From UP alumna Sel Obedicen:
Dear Friends,
I am writing on behalf of Sophie and her parents, Cris and Aicel Delgado. Sophie was born last Sept. 25, 2007, and was diagnosed with Ondine’s disease (Congenital Central Hypoventilation Syndrome – CCHS), a rare neurological disorder where the signal to breathe is never generated by the brain or [...]
Entries Tagged as 'Letters'
Please help Baby Sophie
January 9th, 2008 · No Comments
Tags: Letters